Subjective and Objective Measures of Dryness Symptoms in Primary Sjögren's Syndrome: Capturing the Discrepancy

نویسندگان

  • Oriana M. Bezzina
  • Peter Gallagher
  • Sheryl Mitchell
  • Simon J. Bowman
  • Bridget Griffiths
  • Victoria Hindmarsh
  • Ben Hargreaves
  • Elizabeth J. Price
  • Colin T. Pease
  • Paul Emery
  • Peter Lanyon
  • Michele Bombardieri
  • Nurhan Sutcliffe
  • Costantino Pitzalis
  • John Hunter
  • Monica Gupta
  • John McLaren
  • Anne M. Cooper
  • Marian Regan
  • Ian P. Giles
  • David A. Isenberg
  • Vadivelu Saravanan
  • David Coady
  • Bhaskar Dasgupta
  • Neil J. McHugh
  • Steven A. Young‐Min
  • Robert J. Moots
  • Nagui Gendi
  • Mohammed Akil
  • Kirsten MacKay
  • W. Fai Ng
  • Lucy J. Robinson
  • Elalaine C Bacabac
  • Robert Moots
  • Kuntal Chakravarty
  • Shamin Lamabadusuriya
  • Constantino Pitzalis
  • Rashidat Adeniba
  • John Hamburger
  • Andrea Richards
  • Saaeha Rauz
  • Sue Brailsford
  • Joanne Logan
  • Diarmuid Mulherin
  • Jacqueline Andrews
  • Alison McManus
  • Colin Pease
  • Alison Booth
  • Theodoros Dimitroulas
  • Lucy Kadiki
  • Daljit Kaur
  • George Kitas
  • Mark Lloyd
  • Lisa Moore
  • Esther Gordon
  • Cathy Lawson
  • Lesley Stirton
  • Gill Ortiz
  • Elizabeth Price
  • Gavin Clunie
  • Ginny Rose
  • Sue Cuckow
  • Susan Knight
  • Deborah Symmons
  • Beverley Jones
  • Shereen Al‐Ali
  • Andrew Carr
  • Katherine Collins
  • Ian Corbett
  • Christine Downie
  • Suzanne Edgar
  • Marco Carrozzo
  • Francisco Figuereido
  • Heather Foggo
  • Claire Humphreys
  • Katherine James
  • Dennis Lendrem
  • James Locke
  • Iain Macleod
  • Philip Mawson
  • Philip Stocks
  • Jessica Tarn
  • Adrian Jones
  • Alice Muir
  • Paula White
  • Steven Young‐Min
  • Susan Pugmire
  • Saravanan Vadivelu
  • Annie Cooper
  • Marianne Watkins
  • Anne Field
  • Stephen Kaye
  • Devesh Mewar
  • Patricia Medcalf
  • Pamela Tomlinson
  • Debbie Whiteside
  • Neil McHugh
  • John Pauling
  • Julie James
  • Nike Olaitan
  • Jayne McDermott
  • Olivia Godia
  • Elizabeth Kidd
  • Lynne Palmer
  • Victoria Katsande
  • Pamela Long
  • Charles Li
  • Usha Chandra
  • Stefano Fedele
  • Ada Ferenkeh‐Koroma
  • Ian Giles
  • David Isenberg
  • Helena Maconnell
  • Stephen Porter
  • Paul Allcoat
چکیده

OBJECTIVE To develop a novel method for capturing the discrepancy between objective tests and subjective dryness symptoms (a sensitivity scale) and to explore predictors of dryness sensitivity. METHODS Archive data from the UK Primary Sjögren's Syndrome Registry (n = 688) were used. Patients were classified on a scale from -5 (stoical) to +5 (sensitive) depending on the degree of discrepancy between their objective and subjective symptoms classes. Sensitivity scores were correlated with demographic variables, disease-related factors, and symptoms of pain, fatigue, anxiety, and depression. RESULTS Patients were on average relatively stoical for both types of dryness symptoms (mean ± SD ocular dryness -0.42 ± 2.2 and -1.24 ± 1.6 oral dryness). Twenty-seven percent of patients were classified as sensitive to ocular dryness and 9% to oral dryness. Hierarchical regression analyses identified the strongest predictor of ocular dryness sensitivity to be self-reported pain and that of oral dryness sensitivity to be self-reported fatigue. CONCLUSION Ocular and oral dryness sensitivity can be classified on a continuous scale. The 2 symptom types are predicted by different variables. A large number of factors remain to be explored that may impact symptom sensitivity in primary Sjögren's syndrome, and the proposed method could be used to identify relatively sensitive and stoical patients for future studies.

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عنوان ژورنال:

دوره 69  شماره 

صفحات  -

تاریخ انتشار 2017